Tag Archives: Quack

Buryznski and The BBC, Cancer Quackery In Mexico and Do Doctors Die Differently From Patients?

14 Jan

I decided to write to the BBC again as I have not been the slighted bit satisfied by their previous responses. 

“The antineoplaston therapy aims to target the cancer without destroying normal cells.”
Whilst this may be the aim, of any chemotherapy, it is clearly untrue, as demonstrated in the literature, e.g. http://www.cancer.gov/cancertopics/pdq/cam/antineoplastons/healthprofessional/page6
Antineoplaston therapy has numerous toxic side effects.
“The therapy involves antineoplastons – naturally occurring peptides in the body.” Missed out that they were derived from urine but now chemically synthesised and are the orphan drug sodium phenylbutyrate http://www.sciencebasedmedicine.org/index.php/stanislaw-burzynski-antineoplastons-and-the-orphan-drug-sodium-phenyl-butyrate/
“observed cancer patients typically had a deficiency of certain peptides in their blood.” no mention that no phase 3 trials conducted in 35 yrs, that current res shows no promise of efficacy & that correlation doesn’t imply cause or cure only offers a hypothesis of prior plausibility, which since proposed 35yrs ago still remains unfounded.
Please present evidence that these statements are factual and correct if you disagree. Thanks.

This video on cancer quackery in Mexico and at US borders is very relevant as to why we should maintain skepticism about Burzynski’s clinic.

Also of interest is this article “How Do You Want To Die?” based around an article describing a vast difference between how doctors die and how much, and what type of palliative care they receive compared to what patients receive. It discusses some of the difficult decisions around offering futile treatments and prolonging life but lessoning quality of life vs maintaining a shorter life with less invasive procedures, side effects and pain. Interesting stuff, would be nice to see some data on whether or not Doctors really do opt for less care. The article does highlight a problem with difficulties that families may face who are grieving, being given the responsibility to choose between complicated, confusing and not well described treatments and whether or not to go through them for the patient, during such crisis moments.

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A Letter To Gov. Rick Perry Regarding The Burzynski Clinic

5 Dec

A quack website the Alliance Of Natural Health is sending letters to a whole bunch of people to stop them revoking Burzynski’s medical licence. I recommend everyone (US Citizens) send this ‘personalised’ version of their message that I made when I edited their form. I sent it anyway. They’ll love the support and encouragement for their good work.

Look at who it goes to! Gov. Rick Perry and all…

Recipients

  • Representative Lois W. Kolkhorst
  • Representative Vicki Truitt
  • Representative John Zerwas
  • Representative Carol Alvarado
  • Senator Bob Deuell
  • Representative Veronica Gonzales
  • Senator Jose Rodriguez
  • Senator Dan Patrick
  • Governor Rick Perry
  • Representative Sarah Davis
  • Representative Garnet F. Coleman
  • Representative Jodie Laubenberg
  • Senator Joan Huffman
  • Senator Jane Gray Nelson
  • Representative Charles Schwertner
  • Representative Elliott Naishtat
  • Representative Susan King
  • Senator Robert Nichols

Stanislaw Burzynski, MD, PhD (if he ever says where he got this Phd from), has been unsuccessfully treating deadly cancers with a useless, urine derived peptide which is far too large to be at all gene-targeted but is advertised as such anyway. This is usually added to conventional chemotherapy medications but at a 1253% increase in price, and passed off as his own treatment, with no mention that it’s conventional chemotherapy or that he owns the pharmacy that sells the treatment (no declaration of interest) or that it can be bought far cheaper elsewhere — a treatment not currently practiced anywhere in the world except for his Houston clinic.

From 1986 to 1996 the Texas Medical Board launched an unsuccessful campaign to revoke Dr. Burzynski’s license. Now the Texas Medical Board is making another attempt at shutting this practice down, a practice that has promised and failed to cure countless terminal cancer patients–and given those who could not be saved false hope, as well as shorter and lower quality of life, instead of letting patients enjoy time with their families, Burzynski gets them to apply to his ‘clinical trials’, flying them in from across the world, wasting the last weeks, months, or days of their lives undergoing a useless and unproven (practically disproven) treatment. They also have to spend their entire life savings to enrol in these clinical trials. A highly unethical procedure. Using the death of practically 100% of his patients as a pretext, the TMB is charging Dr. Burzynski with the off-label use of FDA-approved drugs.

This treatment is unacceptable. The citizens of Texas — not to mention the rest of the country (and the world) need to be protected from the fraud, extortion and illegal practices of this charlatan.

If the TMB has its way, it will set the “war on cancer” forward three hundred years in terms of important research and progress. Governor Rick Perry personally appointed the heads of the Texas Medical Board, and I urge both the Office of the Governor and the Senate and House committees who have oversight of the TMB to investigate the unfounded treatment Dr. Burzynski practices, and the absurd ‘clinical trials’ he claims to run. It is pleasing that Burzynski should go on trial, but if this can be moved forward please do so, it is painful to know that so many new patients could be conned whilst waiting for the trial that is scheduled to be held in a few months. Please urge the Texas Medical Board to end this pseudoscientific, harmful and dangerous practice now.

Once you review this case for yourselves, I am confident you will find that the TMB does have a legitimate case and Burzynski is abusing his position as a doctor and researcher, whilst exploiting FDA loopholes. In the past 30+ years there has been absolutely no evidence that Burzynski’s regimen has successfully treated a single patient with any type of cancer.

Think of the lives it could save to shut this quack down!

This doctor is practicing entirely outside of the law. He is a useless researcher. His treatments are highly toxic, regularly causing brain swelling and other side effects. He has a much lower success rate than conventional medicines. Please exercise your oversight and make sure his work is NOT allowed to continue any longer.

For Burzynski, Cancer Is Big Business

29 Nov

Cancer Is Big Business At The Burzynski Clinic

Who is Dr (for now) Burzynski and why should I care?

What do Radiohead, Peter Kay and Badly Drawn Boy all have in common?

The Billie Butterfly Fund.

Radiohead are auctioning a guitar, Peter Kay and Badly Drawn Boy are performing live shows and donating the proceedings to the Billie Butterfly Fund.

It’s a moving story, Billie is a four year old girl with an inoperable brain stem tumor. Chemotherapy only offers some respite but the family have found another way…

Or so they believe.

For just £200,000 Billie will be allowed to enrol on a ‘clinical trial’ of antineoplastons at The Burzysnki Clinic. This may cure Billie for good, they believe. In the observer

(“The worst year of my life: cancer has my family in its grip | From the Observer | The Observer,” Bainbridge, 2011) Luke Bainbridge (Billie’s uncle) writes “Is it impossible for her to survive? No, as it turns out. Sam and Terri very quickly found out about a pioneering treatment at the Burzynski Clinic in Texas for children with DIPG. The estimated cost is £200,000.”

However, not all is as it seems.

So why does this matter?

For a start, if Burzynski can cure cancer then he deserves a noble prize. He is also professionally and ethically obliged to publish his results, demonstrating that he can cure, for the greater good of humanity and society.

If Burzysnki cannot cure cancer then he is ethically obliged to release the results of his clinical trials, so that we can make a firm conclusion that antineoplastons are not effective against cancer. This would enable researchers and patients to focus their energy, time and money elsewhere. As you’ll see Burzynski’s treatment is not cheap, if it’s also useless then Burzynski is doing nothing more than praying on the desperate, ill and vulnerable in society and selling them false hope in return. If Burzynski’s treatment doesn’t work then there is no need for Burzynski to continue running ‘clinical trials’ to find out.

Before we delve into Burzynski’s research lets first look at the other public campaigns to raise money to get people this treatment and how they turned out.

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